Join Us in Austin for the Central Texas Narcolepsy Forum

Originally at: http://julieflygare.com/join-us-in-austin-for-the-central-texas-narcolepsy-forum/

Friends, I’m thrilled to share the news that Project Sleep is co-hosting a unique one-day event in Austin, TX with the Austin Narcolepsy Support Group on Saturday, June 15, 2019 from 10:00 a.m. – 3:00 p.m. Please join us for the Central Texas Narcolepsy Forum – see the full details and register today! 

Why am I so excited about this event?

  1. Todd J. Swick, MD is one of my very favorite people and narcolepsy experts! I’m so honored that Dr. Swick will join us for this event and share about novel upcoming treatments for narcolepsy type 1, type 2 and idiopathic hypersomnia. This is a VERY exciting time for narcolepsy drug development with many new options on the horizon, so Dr. Swick’s presentation is timely and important.
  2. In the afternoon, I’ll be leading a brand-new interactive workshop designed to help you effectively share your story in various settings from the dinner table to Capitol Hill. Sharing about our experiences with narcolepsy can be challenging, but our stories matter and are hugely effective tools for raising awareness and advocacy efforts.
  3. I’ve never been to Austin but heard great things! Plus, I’ve been in touch with the narcolepsy community there for many years now. A HUGE special shout out and thank you to Kami Barron and the Austin Narcolepsy Support Group for making this a reality! I’m so grateful for your kind invitation to speak in Austin.

Who Should Attend?

This event is appropriate for anyone looking to learn more about narcolepsy, both those very familiar with the condition along with healthcare providers, human resources and education professionals. 

Spread the word!

Print and share the event flyer or share this post with friends and family on social media.

See the full details and register today! Space is limited.

from Blog – Julie Flygare http://julieflygare.com/join-us-in-austin-for-the-central-texas-narcolepsy-forum/…

Upcoming Movie, Ode to Joy, Featuring Narcolepsy with Cataplexy Portrayal

Originally at: http://julieflygare.com/upcoming-movie-ode-to-joy-featuring-narcolepsy-with-cataplexy-portrayal/

Today, Project Sleep issued the following public statement after receiving many questions from community members about the upcoming feature-length movie, Ode to Joy. I look forward to sharing more news as soon as we can. Thank you for your incredible support of Project Sleep’s efforts to improve outcomes for people with narcolepsy through our programming including the Rising Voices fo Narcolepsy leadership training program, Narcolepsy: Not Alone campaign, Jack & Julie Narcolepsy Scholarship and our exciting new effort joining 21 other organizations around the world to establish the inaugural World Narcolepsy Day for Sept. 22, 2019!!

Project Sleep’s Public Statement: Narcolepsy Portrayal in Film, Ode to Joy

Los Angeles, CA, April 10, 2019 — Project Sleep would like to inform our supporters and the narcolepsy community that we are aware of Ode to Joy — an upcoming feature film depicting a main character portrayal of narcolepsy with cataplexy. The portrayal was inspired by a 2010 NPR This American Life segment titled “I’ve Fallen In Love and I Can’t Get Up.”

Project Sleep is committed to advancing our bold goals to increase the public’s knowledge of narcolepsy to 80% by 2025; reduce delays in proper diagnosis from 8-15 years to two years by 2030; and reduce stigma for those living with narcolepsy. We understand the primary goal of film is entertainment, while also recognizing the role entertainment plays in helping to shape societal perceptions of health conditions like narcolepsy. We have been in conversation with the producers over the past few months about possible opportunities to work together to raise awareness. We look forward to continuing this conversation with the film’s team and continuing to do everything we can to amplify the voices of people living with narcolepsy and their loved ones through our organization’s programming and public relations efforts. 

Sign up for our e-updates to be the first to know about important news and program announcements.

from Blog – Julie Flygare http://julieflygare.com/upcoming-movie-ode-to-joy-featuring-narcolepsy-with-cataplexy-portrayal/…