Originally at: http://julieflygare.com/seattle-speaking-sleep-advocacy-and-narcolepsy-awareness/
Seattle: I’m so excited to visit soon for three speaking engagements!
1.) Speaking Advocacy at the Hypersomnia Education Meeting
I’m extremely honored that the Hypersomnia Foundation has invited me to speak about Project Sleep’s Advocacy at their upcoming Hypersomnia Education Meeting on Saturday, June 29, 2019, taking place from 10am – 3pm at the Seattle Airport Marriott. This event features a lineup of terrific speakers including the always amazing Dr. David Rye!
My Presentation Description: Scientists are making progress, but more research is urgently needed to better understand and treat idiopathic hypersomnia (IH) and other serious sleep conditions. What can we do as patient advocates to accelerate research? One important approach is through strategic advocacy efforts. In this presentation, Flygare will demystify the advocacy process, highlight recent sleep community successes, and empower attendees with simple steps to take action. Attendees will gain a better understanding of how each of our voices makes a difference in educating decision-makers and advancing research to improve outcomes for those living with sleep conditions including IH.
Learn more and register here: https://www.hypersomniafoundation.org/event/seattle-meeting-2019/
2.) Narcolepsy Presentation with Northwest Narcolepsy Support Group
On Sunday, June 30, 2019, at 11:00 a.m., I will share my inspiring narcolepsy presentation “When Dreams Leave the Night” with the Northwest Narcolepsy Support Group. Please join us for this event, I believe the exact location details are being worked out now, so visit the Northwest Narcolepsy Support Group website to keep up-to-date on the details of this event: www.northwestnarcolepsy.org.
Presentation Description: In this presentation, Julie will share her personal journey from facing mysterious symptoms in law school through receiving a narcolepsy diagnosis and becoming an advocate and author. After her presentation, Julie would be thrilled to hear more about your group’s experiences with narcolepsy, answer any questions, sign books and share awareness materials.
3.) Narcolepsy Presentation for the UW Medicine Sleep Conference
Last but not least, on Tuesday, July 2nd, I will share my first-hand patient-perspective narcolepsy presentation with the University of Washington Medicine sleep fellows during their Sleep Conference. I love speaking with healthcare professionals and look forward to this awesome opportunity.
Wow, this should be another whirlwind trip, after my adventures in Texas earlier this month (which I still need to re-cap for you soon). Please send extra spoons my way and I hope to see some of you in Seattle soon!
from Blog – Julie Flygare http://julieflygare.com/seattle-speaking-sleep-advocacy-and-narcolepsy-awareness/